May is NF Awareness Month, and really every day should be NF Awareness day but in a particular effort to help get the word out Thursday, May 20 is THE NF Awareness Day. Please share this article with friends and family to help us get the word out and end NF!
Number 10: Neurofibromatosis (NF) affects more than one in every 3,000 children born each day (*that’s more than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease combined (http://ctf.org/Living-with
Number 9: It only takes 8 to 10 letters from you and your friends to your congressman or congresswoman for them to start noticing that NF is a very REAL issue. (http://ctf.org/How-You-Can
Number 8: NF research is shedding new light on cancer, brain tumors, learning disabilities, and bone abnormalities - ultimately benefiting the broader community, in addition to those with NF. (http://ctf.org/blog)
Number 7: On May 8th, in Greensboro NC, there were more than 1,700,000 steps taken to find a cure for NF at the first North Carolina NF Walk (http://www.ctf.org/How-You
Number 6: The NF Clinic Network now has 42 recognized centers throughout the country (http://ctf.org/Living-with
Number 5: This year, Racing4Research completed 611 Laps in the Rolex 24 Hours at Daytona International Speedway raising spirits, funds, and awareness for our NF Heroes! (http://racing4research.org
Number 4: To date, the Foundation's investment of $700,000 in the Drug Discovery Initiative has returned $3.7 million in follow-on funding. Every dollar counts. (http://ctf.org/Living-with
Number 3: In 2009 more than 1,500 Runners in NF Singlets crossed finish lines in 50 races nationwide for the NF Endurance Team.(http://nfendurance.org/)
Number 2: There are three forms of neurofibromatosis, NF1, NF2, and schwannomatosis, each cause tumors to grow on nerve endings in or on the body. (http://ctf.org/Living)
And the Number 1 thing to be Aware of on NF Awareness Day... Every day NF research is moving closer to treatments and a cure for the many manifestations of NF. Your continued support of this critical research is bettering the lives of millions of people as we work to end NF!
Landon, Michal, Aiden and Xavier are all afflicted with Neurofibromatosis Type 1. We are hopeful they will find a cure in their lifetimes!
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